CHAMP app saves babies lives

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I think in the back of each of our
minds we were planning a little
funeral, and you just didn't know
where it would go after he was born.
>> We'd hear a song on the radio and
we'd be like,
maybe that's one we'd
like at his funeral.
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>> Winston was diagnosed with HLHS,
which is hypoplastic
left heart syndrome.
>> One in a 100 to about 125 babies
are born with heart disease every
year, and out of those about
1% are born with half a heart.
Out of all the heart surgery we
do this is the most high risk.
>> They lose about 25% of these
babies in between the two surgeries.
>> The standard of care at the time
was to send these families home with
a weighing scale and a pulse
oximeter and a three-ring binder and
they were asked to record
measurements of their baby
every day.
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>> So we needed a method that we
could actually send something home
with the parents so that we could
better monitor and be alerted if
there were conditions that we were
concerned about with the patient.
We have a Microsoft Surface
that we load our software on.
We call it CHAMP.
We decided we wanted to use
a modern app with Windows 10 as
the operating system.
>> We would log all of his vitals,
and
that app became this
seamless piece to his care.
>> With the daily reports that
come in from the Azure Cloud
if anything is an outlier that needs
to be notified to us immediately
it'll alert us.
>> One night we're debating
do we call, do we not call?
But we logged it in.
>> When we were looking at his
information, he had a couple days of
not gaining weight, he was
breathing a little bit harder, and
he just wasn't happy on his video.
They could pull it from when he
was doing fine and saying, okay,
a couple weeks ago,
this is what he looked like.
Now he looks like this.
We think it is Is part of his aorta.
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>> We were scared.
It was real, real fast.
>> They did the procedure
the next day and
then I think he went
home the day after.
>> This technology
literally saved his life.
>> The first time that I heard
a child's life had been saved with
CHAMP, I left the room because I
kind of needed to tear up in private
because it was a dream that
I had for a long, long time.
>> The goal is to get this out to
as many patients as possible, so
that we can help save kids' lives
throughout the world eventually.
>> For everyone behind the scenes,
we're very thankful for it.
It saved his life and
how do you say thank you for that?
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